My Trip to NIH

The NIH has been a real champion of cystinosis; they were instrumental in the development of cysteamine.  Cysteamine is the drug I take to slow the progression of cystinosis.  The NIH is conducting a long term study of cystinosis and I was happy to be a part of it.  Mommy and Daddy ran me about the building to see a lot of doctors who looked at my eyes, bones, teeth and kidneys.  All things considered, the doctors thought I was doing great and told me to keep up the good work taking all my medicine.