2016 CRF Day of Hope

My parents and I had the opportunity to attend the 2016 CRF Day of Hope conference and Natalie's Wish gala. I had so much fun meeting all of the other kids and adults who also have cystinosis, and we learned so much.  Mommy, Daddy, and I were able to present Nancy and Jeff Stack, the founders of the CRF, with over $3,000 to be used to find a cure for my disease... We raised this money in just under 2 months, thanks to Mommy and Daddy's friends and family who took it upon themselves to help me out!! We love our friends and family so much for doing this for me, and we also love all of our new friends that we met at the conference.  We have a lot of hope that my disease will be cured in my lifetime, and we have also made friends for life because of this diagnosis.... We look forward to continuing to raise money for the CURE!