2017 CRF Day of Hope

In April we traveled out to California for our second CRF Day of Hope and we were able to see many of our friends in the cystinosis community.  Mommy and Daddy were especially happy to see some of the other parents, especially the ones that listened to them and gave them advice a year ago when I was first diagnosed with cystinosis.  We were able to present a huge check to CRF during the Natalie’s Wish Gala which represented all the donations from our friends and family.  During the auction the generous attendees at the event enabled CRF to raise another $3.6 million, all of which will fund research to help cure me and my friends!  Mommy and Daddy were also able to listen to presentations about all the progress that was made over the past year. Daddy was especially happy to learn that so much progress has been made over just the last year.